Sunday, June 19, 2016

I'm Still Here

Today marks 51 weeks since Libby died. I know that number not from looking forward and knowing the one year anniversary is next week, but because every Sunday, usually while sitting in church, I remember the Sunday that she died, and mark how many weeks it's been. How many weeks since we begged the doctors to keep her alive until June 28 so she wouldn't die on her sister's birthday (June 27) and so that she could be an organ donor. We got one of the two. Libby died in our arms, as we shared funny memories about her, shortly after 12 a.m. on the 28th.

So surreal, so wrong to walk out of the hospital minus one child. As we turned in our badges in the lobby before heading to our van (with the car seat that was suddenly rendered useless), the people we passed didn't know what had just happened minutes before. Even now, no one can look at me and know the most important thing about me, that my daughter died. And isn't that true for all of us? We have to dig and discover to get below the surface of one another. We each have our own stories that are often surprising and not what one would expect. I remember listening to a fellow mom's testiony a number of years ago. I didn't know her well, but perceived her as one of those moms who just has it all together, has had a good life. Beautiful and kind, a happy loving family, organized, stylish, a strong faith, the whole package. But in high school she came home one day to find her older sister murdered by her brother-in-law who had then killed himself. I often think back on the experience of hearing her story, a story I never would have expected in a million years, and I'm reminded, once again, that there is so much more to each of us than meets the eye.

I'm always so appreciative of people who have the willingness and ability to take the time to really see and hear other people. I like being on the receiving end of that but struggle with finding the right ways to engage others. These days I'm grateful when I have the chance to talk about what I'm always thinking about. A dear friend visited me a few months ago and we were able to spend one day together. It was one of those perfect days.  One of the things she did that meant so much was that she read my Bible, the Bible I've journaled in this past year. And she didn't just thumb through it looking at the pictures. For probably close to two hours she read every word and feeling I had written in there. I can truly say my heart and soul are in that Bible and it was such an honor to have someone so interested in it, in me.

I wish there was an easy way to get to the heart and soul of people. How nice it would be if everyone came with their own book, or video that just got down to the business of who they truly are. Even before Libby died I have always been shy, unsure of what to say, what I had to offer, how to truly engage people. And now it's even more of a struggle. My brain is still not as it once was. The large majority of my thoughts are about Libby in one way or another, and I find it difficult to carry on varied conversations, even with good friends. How do I engage and learn about the people I interact with every day? Are there Pinterest pages about easy tips and topics to use in conversation so you can focus on others? Sigh. My struggle is real.

It's been four months since my last blog post. I'm trying to think about what to say to sum up that time. My absence here isn't because there was nothing worth saying. The previous posts I've done felt important, experiences and feelings I wanted to record and remember, if only for myself. So many of you have been so kind, not only in taking the time to read what I write (even though brevity is clearly not my strong suit), but to also praise my writing. It's so very flattering to hear that, but the truth is, writing is not easy for me. Yes, a lot of the writing I have done this year has flowed  and been very therapeutic, but even then there's still lots of detail work in the editing which can be a lot on my brain. In short, these past months have been a time when the thought of writing a blog post just seemed very intimidating and exhausting. I went through a pretty bad episode of depression as well. Everything in life felt overwhelming. The really bad days, which previously had never been more than one at a time, were now much more consistent and it was increasingly difficult to maintain a good mood. Everything was overwhelming and hard. Everything irritated me, especially if it was said or done by someone to whom I was married. And my sweet husband, he put up with me beautifully, stepping up and filling in all the areas I was leaving empty.

Grief mixed with depression was a whole new beast. I described it where Grief is your bad roommate. You don't like them, but you've gotten used to them, you know their habits, and generally what to expect. But then all of a sudden their evil-er twin shows up and everything is different and you have no idea what to expect, only you know none of it will be good. That's grief plus depression and let me tell you, it bites. I met with a new doctor and after 15 minutes of talking to me she suggested I see a psychiatrist for anti-depressants. And in the meantime she would just write me a prescription so I could get started on something right away. Excuse me? I was a bit shocked. This was a doctor who had gotten many of my friends off of their anti-depressants. And she had just met me! How could she know after a brief conversation with me? It's not like I sat crying in her office (well, not much anyway). I was still able to get out of bed. I got the basics done. Where do you draw the line to say what's grief and what's depression? I recounted this to my therapist who knows me. To my surprise she also applauded the suggestion of  medicating me. Well, I started on the meds and things just got worse. Another month, another medication, but still things continued to worsen. My therapist sent me back to my psychiatrist immediately. He didn't  change the medication but upped the dosage a bit. I'm telling you, after one full dose, I woke up like a new person. It was amazing. It was as if the final number of the combination had clicked into place and the vault was opened, with the treasure being my sanity, getting my self back. All of  a sudden life, my emotions, my family, were all bearable. I could still feel sad and cry and grieve, but I could also be happy and experience joy and take interest in life again. To see how my brain reacted to the medication, it was clear there was a chemical imbalance going on. How grateful I am to live in a time where there are treatments when our bodies can't fully regulate themselves and need a little assistance.

So I'm doing better now and that is such a relief. I didn't have any clear direction as I sat down to write tonight, but I thought I just needed to get something down, for my own well-being so I can show my brain it's not as bad as I make it out to be. I know I'm all over the place here and I know when I post it there will still be typos and and it won't be very tightly written, but it will be written and sometimes it doesn't need to be perfect, it just needs to be done. There's accomplishment in simply doing something, finishing something.

So tonight, after just one round of proofreading (instead of at least three), I'm calling this done. This was a good warm up for me, because with the impending anniversary, there are more, harder things to write. Maybe my brain will start believing it's not so hard. Or maybe I will realize I can do hard things and sometimes just getting through it is hard enough and I don't need to expect more than that.

14 comments:

  1. Love you friend. It's a long long road and sadly we have a long time to navigate it.

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  2. I love reading your blog. I can't even imagine what you, and parents like you, have gone through. I've gone through five miscarriages, with one rainbow baby after the first miscarriage, but to lose an infant, a child who is born but doesn't get to come home, is unimaginable. You and Kristin (I basically grew up wither and know that she's experienced the loss of a child) are in my prayers. God bless you and the parents walking the same path. <3

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    1. Thank you so much for reading and taking the time to write, Katt. Thank you for putting in the effort and emotional investment to meet loss parents where they are in their pain, in their walk through grief. Friends like that are precious.

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  3. "I will realize I can do hard things and sometimes just getting through it is hard enough and I don't need to expect more than that." LOVED this line!!!! Rang so true to my soul. Thank you for it.

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    1. Thank you, Mindy, and you are welcome. :) I agree, it is a good line. I should work on reminding myself of it more often! :) There have been a lot of lessons this year about learning to have grace for myself, and I think that's something we can all gift ourselves with.

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  4. It's so moving to read these words from you. Although I think we only met once or twice at iMom, I have felt so saddened by your loss of Libby and have read all your posts and been in regular prayer for you and your family this year. Thank you for your honesty about depression and medication. We're not real enough about that in the Church so much of the time. And I'm grateful to hear that it has helped you find some joy again, even as you continue to grieve. I love seeing pictures of you with Libby and thinking about what a joy she must have been during her brief time with you. My littlest is very close in age, and the grief must be unimaginable. I continue to pray for healing of your heart and for grace, grace, and more grace to keep walking forward. Praise our loving God that He holds her close till you can be with her again.

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    1. Thank you so much for your kind words, prayers, and remembrance, Jenny. And thank you for taking the time to read and write. I've struggled with depression on and off my whole life probably. Most often with no medications. Yes, there are lots of natural remedies which are certainly helpful, but we've got to stop having stigmas around mental health and medications. Yes, it can be overdone, but the difference it's made in me now has been life-chnaging for me (and my family who has to live with me) on a daily basis.

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  5. so thankful that you have some help right now to move through and fill in a bit of the ragged edges and yet be in the hard part too--surrounding you for the Anniversary day walk with a full heart

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    1. Thank you so very much, Connie. He's doing lots of filler around all those ragged edges right now. It often seems as if there's just a big bubble around my deep emotions. So grateful for that protection so I don't have to bear it all at once because that would simply be too much.

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  6. Erika, thank you for sharing your thoughts. You are in our hearts and in our prayers. (I understand the writing part somewhat. I grieve for my city, Orlando. I know what I want to write, but I just can't write at this time. My heart is so heavy.) Thank you. Reading what you wrote was helpful for me. God's peace surround you, my friend.

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    1. Thank you, Ken. It's just heartbreaking what's happened in Orlando, but to be there in the heart of it, living through it on a daily basis must be so hard. So hard to ignore or forget briefly. When you're ready I look forward to reading your thoughts on this time.

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  7. Erika, beautiful as always (and with a teacher's eye, I didn't notice any errors...😊) You are brave, strong, beautiful, and such an inspiration to all of us mothers. Thank you for your honesty and openess about medication and mental health. The more it gets discussed, hopefully the more aware and more accepting society will become. I too started anti-anxiety/depression meds this year, and I wish I hadnt waited so long. I feel like, after 10 extremely difficult years, I'm finally getting myself back. Love to you and your family always and you will forever have my continued prayers.

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  8. Thank you for sharing your story, Tiffany. I'm so glad you are feeling the positive effects of the medications and that those have worked for you so well. I hope it's been a happy reunion with yourself. :)

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